Sorry it's taken me so long to update!
I haven't been able to muster the energy, nor concentration to update regularly over the last few months, so my apologies. Things were up and down skin wise. Energy slightly improved but I don't think the body and brain ever get used to the sleep deprivation which continued. I did see some improvements though, namely hair growing back!! Still crazy itchy over Jan/Feb (mths 12&13 tsw). The summer heat drove me nuts and exacerbated the itch. Sun still wasn't much good for me unfortunately. Hoping to reap some benefit from it soon when my skin can cope. Pressure bandaged in the nights and used multiple icepacks to try and alleviate itch but more than not, had to take them off and jump in the bath, the only thing that helped to settle temporarily. Face still doing fairly. Rest of the skin looked improved and was stronger but still felt sore to move, felt structurally impaired. Energy gone from -5 out of 10 to a 3 out of 10!! All in all probably the best so far at this point.
Will update Mar/April and May over the coming week so I can get this back up to current date. Hoping everyone's hanging in there. Know you are not alone!!! This sure is a tough trot but we'll all get there and it will be totally worth it 'cause we're tough cookies. Even if some days it can seem more than slightly questionable!! WE WILL get there, I can't believe I've made it over year line and into the next. It's all of you Skin Warriors who continue give me the courage to persevere one day at a time !!!
Lots of Love, Caroline
Month 12 Jan 2015
Month 13 Feb 2015